Sickle Cell Disease
Warrior
Wisdom
Real warriors, real wisdom, real hope.
This website was made for sickle cell warriors, with sickle cell warriors.
Our aim is to give you information to consider if joining a clinical trial is right for you.
This website is for education and clinical trial recruitment and is not intended to promote any products.
Ready to expand your warrior wisdom? Read on to explore.
Engaging warriors, advancing research
We’re building a space for you to explore personal stories, clinical trial information, and details about an upcoming Novo Nordisk trial for SCD.
What is sickle cell disease?
To learn more about sickle cell disease (SCD) visit the Sickle Cell Disease Association of America.
Sickle cell disease (SCD) is a genetic blood disorder in which people have some red blood cells that are shaped like a “C” or a sickle.
This can block blood flow, leading to pain, anemia, and other health problems including infection and damage to vital organs.
What it means to be a warrior
No matter how many times I'm hospitalized, no matter what setbacks I have, I'm always going to make sure that I accomplish what I want to accomplish in life, and that's what makes me a sickle cell warrior.
Taj |
Sickle Cell Warrior
Warriors show strength and resilience
Every day, warriors press on through fatigue, hospital visits, and physical challenges with courage and strength. And they refuse to let SCD define or defeat them.
I fought through, and I was able to graduate a couple of days after I got out of the hospital. This has been one of the shining moments in my life.
Justina |
Sickle Cell Warrior
Today warriors are doing things they were told they would never be able to do. Graduating from college. Having children. Thriving in satisfying careers. Traveling the world. Enjoying their grandchildren.
Yet despite over 100 years of progress thanks to improved care and a better understanding of SCD, there is still a lack of treatment options for SCD.
Warriors want treatments that address their concerns – but the current treatment options are limited and do not work for everyone.
Hope is on the horizon – and we can get there together.
The only way to develop new treatments is through clinical trials. Clinical trials can help us take big steps forward in our understanding of SCD and help us discover new and better treatment options.
As a child, my parents made the choice to enroll me in trials. Today as an adult I get to see the impact of some of those trials in changing pediatric care for SCD at my own childhood hematology center.
Shay | Sickle Cell Warrior
